How would you like to die?
This is the question Craig Schonegevel’s brave life and
death challenge us to ask of ourselves and the society
we live in. Is it humane to deny those who suffer from
an incurable or life-threatening illness the right to a
The Last Right is the true story of Craig Schonegevel
who suffered from the extremely variable condition
known as Neurofibromatosis Type 1. In Craig’s case
his life was mostly one of operations, pain and
suffering and his brave attempts to slay the NF 1
dragon that kept on gnawing at his life and his body.
His extraordinary courage in the face of this disease
is to be admired and provides some relief from the
anguish and sadness that pervades the book. Craig
was 28 years old when he decided he had had enough,
his symptoms began to worsen and the agony was too
much to bear so he sought self-deliverance.
…this story of Craig’s life and his death will not
only bring meaning to his suffering, strength
and determination but also open the way for
others with terminal illnesses or life-threatening
diseases who believe that they too have a last
right to die in peace.
– Marianne Thamm
The Last Right asks the reader to put themselves
in Craig’s shoes, to get to know how the disease
Neurofibromatosis Type 1 affected him and finally to
decide whether they would have considered making
the same choice that Craig did. It is the true story
of how one family, their friends and the community
they live in were forced to deal with one of life’s
most devastating events – the dying and death of a
loved one. Each role player in Craig’s journey to selfdeliverance
faced monumental ethnical, moral and
spiritual questions. This is as much their story as it is
Marianne Thamm is an award-winning writer,
columnist, journalist and satirist who has authored
several works of non-fiction, including the bestselling
I Have Life – Alison’s Journey. Her columns
have amused, stimulated and sometimes enraged
readers for the past 25 years.